CARE, LIFE QUALITY, DIGNITY, HOPE, COMPASSION
We change the lives of those who live with an incurable disease, by care and compassion, unconditionally offered, with the purpose of offering dignity and hope.
Our vision is that, in Romania, all patients that suffer from incurable diseases benefit from adequate palliative services at the right time, so they can live every moment of their lives with dignity, amongst their beloved ones.
We offer professional care and dedication to children and adults living with an incurable disease. We also develop palliative care at a national and international level by information, education, consultancy and law improvement.
For 24 years, first in Brașov and then in București, Făgăraș și Zărnești, HOSPICE Casa Speranței has developed full palliative care services that are being offered in day centres, outpatient and inpatient units, at the patients’ home and in the partner hospitals.
At the beginning of the 90s, HOSPICE started with a small mobile medical team that offered home care to the patients suffering from an incurable disease in Brasov. Slowly, overcoming all obstacles, the organization developed and in 2002, Brasov saw the opening of the first centre of integrated palliative care services. This reunited all types of palliative services in the same place. The centre includes distinct sections destined for adults and children, with inpatient unit, day centres, halls for Kinesiotherapy, psychological counselling cabinet and a unit for outpatient care. Here we also have teams that offer palliative in a home care system.
In 2006, HOSPICE services have extended to Bucharest, where home care teams have started offering palliative care to patients, both in their homes and in the hospitals that have partnered HOSPICE. In 2008, the home care mobile units from Făgăraş and Zărneşti were founded.
An important moment in the existence of the organization and of the palliative care development occurred in September 2014 in Bucharest, when a modern centre of palliative care was opened. This was a 5.7 million Euro investment.
In 2012, the Florescu Family donated to HOSPICE a property located in Adunații Copăceni, 20km away from Bucharest. Here, the organization started to develop a socio-medical centre that will offer free services to children that suffer from a life-limiting illness and to their families. The socio-medical centre is designed as a space where they can find support and comfort, when they face not only health problems but also social and material ones.
Until now, more than 20.000 people affected by incurable illnesses, both children and adults have received free palliative care from HOSPICE. They and their families have found out that they are not alone in their fight against the disease.
Palliative care is a type of care that combines interventions and treatment having as purpose the improvement of the life quality that the patients and their families are living, in order for them to fight with their problems that are associated with a life-threatening illness. This is being done through the prevention and elimination of the suffering, by the early identification, correct evaluation and treatment of pain and other physical, psycho-social and spiritual problems.
The specialized palliative care is the type of specialized care that is being offered by authorized providers. These providers have interdisciplinary teams made out of staff with in-depth studies of palliation and offer direct care to the patients and their families.
Among the direct interventions of palliative care we have: Medical interventions (holistic evaluation, establishment of the palliative diagnostic, management of the symptoms, communication, education and counselling of the patient and family); Nursing type care; Therapy services; Psychological assistance services; Social services; Spiritual support services; Education and information services for self-care.
Palliative Care for Children
The life expectation of children affected by incurable diseases is different from case to case. This is why the Palliative Care for Children can extend over many years. The care time varies a lot, from days to months, or years. This, along with the multiple disabilities of most child patients leads to the exhaustion of the family. One of the main aspects that Children Palliative Care covers is the help that the family receives in dealing with the child’s disease for a long time.
The care unit is represented by the family. This is why support for the whole family is mandatory. Also, ensuring the education for the sick children is essential, as it is their legal right. The purpose of the Children Palliative Care team is to include and mediate the family’s relationship with the school system and also to make sure that the rights of children are respected.